In the last 24 hours...

Our first family photo.


Well today, Grayden seems to be having a much better day. They slowly weaned him down on his oxygen settings all day on the ventilator. Last we were down there (6pm), the oxygen was completely turned off and the ventilator was only providing pressure. Grayden was having to do all the breathing on his own over top of the of tube, in hopes that he will get the tube out at some point either tonight or tomorrow. He was doing pretty well and was keeping his O2 saturation level where it needed to be, but was still having a few episodes where he was "forgetting" to breath. So they will continue to watch him for the next few hours/possibly through the night to see what he is going to do before they make a decision. They were also able to take the bili lights away that he was under due to the jaundice, and he no longer has to wear those snazzy shades, so hooray for one less thing on the poor little guys face. He has been awake and alert many times while we have been down there today and it is fun to see his eyes open and to watch him look around. He def. has those Goff baby blues!! The orthopedic doctor also came to see him today; however we were not there at the time. We hear that he said that Grayden looked great and that he did not need to see him for anything else. The physical therapist also came down and did some basic muscle testing and looked at his range of motion. She said that he looked great and she was very impressed with his range of motion and his movement. She was also very impressed with how regulated he was with all of the commotion around him. She suggested that we continue to stretch his legs/ankles to maintain his range of motion, but otherwise at this point she said that he looked great.



So my nephew Chase really wanted to see a picture of Grayden's back and how it looked so I am posting this picture for him. I am still amazed that it is healed and with how good it looks.

A little video of Grayden looking around and being weaned from the vent.