Grayden had another great night last night. He did not have any episodes of desaturation with his oxygen levels; however I guess this morning he had one brief episode at 6am. So this morning, when the doctors did their rounds, the nurse asked when we could expect to be discharged, and their response was, "probably no sooner than Monday." I was not there for the rounds because I was upstairs having my incision checked out, so I was not able to ask them more questions as to why we have to be here at least another 4 days. I am beyond frustrated and am constantly on the verge of tears. I keep trying to tell myself that it isn't that big of deal, but I just want to go home so badly. As my mom said though, it is probably best that we wait so that when we go home we don't have to worry as much. So anyways, here we sit waiting to go home, waiting to bring our little guy home to meet his big brother.
On a more positive note, Grayden continues to eat really well. He is breastfeeding like a champion! Also, they lowered his daily minimum back down to a more reasonable amount. I knew it seemed like too much when they had raised it up on the surgical unit.
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4 years ago
The NICU is so hard. Both my boys were NICU babies, Caleb (SB) was there for 2 weeks and Benjamin was a preemie and he was there for 5 weeks!! It was really hard with Benjamin because being with him at the hospital meant that I was away from Caleb. It was really hard to juggle it all. Hang in there, you'll get to bring your little guy home soon (just not soon enough). :)
ReplyDeleteI feel for you. The 4 weeks 2 days Ruth was in the Nicu was so hard! And at the end, the 2 extra days they added on made me completely break down. You will get out of there soon! I decided doctors aren't in a hurry when it comes to babies, because they see so many of them come right back. ((HUGS))
ReplyDeleteOh it is so hard to have them keep pushing back your discharge date. Ugh! I felt like I was constantly on the verge of tears while Jacob was in the NICU - even though everything was going okay. Just being in the hospital is stressful and emotional, especially when you feel like you're not in on stuff. I got a little journal and wrote down everything that was happening, what the doctors said, special instructions, things like that - and it really helped the time pass. And I'm still using it! I write down the cute things Jacob does, notes from his doctor visits, and stuff like that.
ReplyDeleteI hope you guys get to go home soon! I cried when I walked in the door of our home with Jacob. You'll be there in no time.
Oh I completely understand and I am so very sorry. We had the exact same thing happen with Carson. Wed. night they told us we would be discharged in the morning. We were so excited!!! We packed up our bags, cleaned out our room at the Ronald Mcdonald house, even had family on their way to help us take things back home. However, Thursday morning we arrived to the nurse telling us the drs. gave the ok... neuro gave the ok... nurse practitioner said no, and no it would be. Reason why was never really given just wait over the weekend and watch him closely. It was so frustrating. :) We came up with our own reason --- Carson was just too cute for them to let him go... I think that's why they are keeping Grayden too. Hugs to you sweet momma!!!
ReplyDeleteI totally understand. I was also away from home for fetal surgery for 3 months, then Nate WOULD NOT wean off oxygen. He kept doing just what Grayden is doing--he'd have one little desat, and he'd have to be there for another 5 days! I really thought I was going to lose my mind.
ReplyDeleteAfter 2.5 weeks, we decided since he was doing awesome with all the SB stuff and was just having trouble with breathing (these "wimpy white boys!") we had him back transported to a children's hospital closer to our home. Is that an option for you? I kept putting it off because I thought surely any day he'd be able to come home, but I'm really glad we did it when we did. He was there for another week. He STILL wouldn't wean off oxygen, and as much as I wanted a wireless baby, we took him home on O2 and a monitor. At least he was home! The NICU is exhausting.
So I know it doesn't help much, but I vividly remember all those feelings you're going through now. It really sucks. But you're almost there. One day at a time.
Oh Kelly, I'm so sorry this is taking soooo long! Maddie wasn't in the NICU very long, and honestly I was scared to bring her home, so if anyhting I wanted them to keep us longer. LOL I know things are frustrating right now, but it's all to give you guys peace of mind once you bring him home...just keep reminding yourself, he's in the best care right now, and when he's ready, he'll come home.
ReplyDeleteBig HUGS form me and Maddie!