There was also an article published in the NY Times today as well as a segment on NPR if you are interested in reading/watching them. They also did a segment on the Nightly News and will be airing a segment on the Today show tomorrow morning (Thursday). I am just hoping that with all this press, that the impression is not given that this surgery cures Spina Bifida. Grayden has Spina Bifida and will always have Spina Bifida. He will still face challenges in his life that he will have to overcome. We are hopeful that the surgery helped to maintain some function that he may not have otherwise had; however only time will tell. Surgery or no surgery we expect him to do great things.
I am hoping that this study is just the beginning for the research that they will continue to do on Spina Bifida. So much more needs to be done on the prevention and treatment of this very common birth defect. Grayden and all of the other amazing kiddos we have met with Spina Bifida will do amazing things in their lives, but I know if we parents had the choice, we would prefer that there was no such thing as Spina Bifida. I am glad to have been part of something that will hopefully continue to change the future for these kids. It was a huge sacrifice, not without its complications but totally worth it.
I love this little laugher sooooo much!!